[The following was originally published in the February, 2011 edition of HME News as a Valentine to the Durable Medical Equipment industry. The love continues.]
I was so angry, wild with fatigue, that I lifted my ugly drug store cane intending to destroy my employer’s computer printer. This was in California’s Silicon Valley. The printer was networked to nine computers. After a late night writing a portion of a manual on silicon wafer inspection, I commanded the computer to print.
After I weaved my way to the printer (seemingly miles away from the computer), there was no document. Five trips back and forth (nothing each time) and my level of frustration caught up to my level of exhaustion. My control was at the breaking point.
Six months previously, I had lost my ability to walk. The concepts I was writing about were hard to understand even when I had been healthy and well-rested. My ability to physically support my body was shaky. I fell several times a day. My right arm had been badly dislocated in a fall. What I needed was a fore-arm crutch with properly fitted prosthetics or a scooter. My doctors focused on understanding how I lost the ability to walk and little on how I could live without walking.
Mortgage payments were due. Home was North Carolina where a wife and two elementary-school-aged children waited. The local economy determined technical writers were not currently needed. At the same time (1996), California needed my skills as of yesterday and I was promptly hired for KLA-Tencor, a company paying large sums to do fascinating work.
I did not break the printer. I drove to my apartment, slept and thumbed the yellow pages praying for relief. I did not know what I was looking for. After a while, I left a voice mail with a dealer in wheelchairs and scooters (not knowing then what a scooter was). That is how I purchased my first mobility device.
Scott returned my call and listened to my situation. We talked price. He recommended a used front-wheel drive scooter. I was skeptical. “Let me show you how it works,” he said, crossed town quickly and lifted a scooter from his truck. I sat down and drove circles around the empty street. My able-bodied college friend David Phillips, in whose house I had an apartment, was fascinated. Keeping David from driving my scooter was hard.
I had discovered three important things about mobility devices:
They are fun.
They take away the drudgery of not being able to walk.
They remove the image that I am someone to be pitied.
I arrived at KLA-Tencor, having:
Given Scott a down payment (the beginning of many, mostly personal, expenditures, on equipment, including rear-wheel drive scooters, power chairs, wheelchair lifts and ramps)
Taken the scooter apart myself and shakily inserted the parts into the trunk
Slid sidewise hugging the Pontiac’s body
Reversed the process
My colleagues applauded. I had solved a physical problem with a technical solution and in the Silicon Valley that was worthy of commendation.
As I look back on the past 14 years, especially worthy of commendation are you, the suppliers of DMEPOS. My time with you here is almost up. Traditionally a column is about 750 words. I have used most of them. A 750-word column can express effectively only one major idea. That idea is that you, the medical suppliers, and people like me, your customers, are a family.
We are a family surviving in a world where David Stockman, Ronald Reagan’s former budget director, said in November on ABC News that the United States can no longer afford to provide its disabled citizens with “scooters.” As competitive bidding illustrates, clearly a bipartisan effort is underway to make it difficult for the disabled to receive mobility and other DMEPOS devices and for you, our local medical suppliers, to get paid for them or even to stay in business.
The pain is especially felt by indigent consumers and small suppliers. In this month where every day is Valentine’s Day, it is helpful to remember the words of Benjamin Franklin (an amorous man if ever there was one) on the signing of the Declaration of Independence: “We must all hang together or assuredly we shall all hang separately.”
–Joel Solkoff is a monthly columnist on disability and elderly related issues for Voices in State College, Pa. He is the author of three books, including The Politics of Food and Learning to Live Again: My Triumph Over Cancer. He served in the Carter Administration as Special Assistant to the Under Secretary of Labor. He has a bipartisan loathing of anyone trying to keep assistive technology from individuals with disabilities—a loathing he is trying to turn into corrective love.
You call the enthusiastic endorsement of Tavenner by Rep.Eric Cantor, House Republican Majority Leader, “Republican opposition.” Give me a break Senator Baucus.
Here is what I told Katrina vanden Heuvel , the editor and publisher of the Nation Magazine [who appeared this Sunday as a refreshingly articulate advocate for abandoning the current foolish policy of austerity above all else on This Week with George Stephanopoulos ] when she asked me to give my younger daughter a gift subscription as a college graduation present:
“I am shocked by The Nation’s failure to report on the deterioration of the current Medicare system which as a recipient and a left-of-center Democrat, I can report on what is actually going on (despite the Nation’s unexamined rhetoric). Indeed, I have suggested that I write about it for you to no avail. Hence, no subscription for my daughter Amelia: https://joelsolkoff.com/blueroof-reality/countdown-to-amelias-graduation/”
In response to the report from the Wall Street Journal below: 11:52 pm May 21, 2012 Joel Solkoff wrote :
The failure of Max Baucus and the 12 Democratic members of the Senate Finance Committee, many of whom are liberals whose rhetoric on saving Medicare is voluminous, to hold hearings on Marilyn Tavenner to be head of Medicare and Medicaid is a disgrace. As a paraplegic who has experienced the deterioration of Medicare as it currently exists under President Obama, the fact that his Administration has not had a confirmed Administrator reveals the sharp disparity between a President who lauds Medicare while cutting its budget by half a trillion dollars as part of the cynical price paid to ensure passage of Obamacare. Eric Cantor’s support of Tavenner would have forced Senate Republicans to think twice about voting against her. As one who enthusiastically supported the President four years ago, my unenthusiastic vote for his re-election is indicative of the lukewarm support that could cost him the election. The Nation, The Progressive, and other presumed defenders of Medicare have failed to be critical of the President’s penny-wise, pound foolish administration of a program which he is currently destroying while speaking eloquently about preserving its future. A genuine confirmation hearing for an Administrator whose budget is larger than the Pentagon’s is long overdue. Failure to hold hearings undermines the Democratic pretense that Medicare is worth saving and makes me ashamed to admit that I am a Democrat. What happened to the party of Adlai Stevenson and Eleanor Roosevelt? The best way for Obama to prove his credibility is to push for the support of his nominee and to indicate his commitment to what used to be Democratic values.
112th Congress (2011 – 2012)
Date Received: December 01, 2011 (112th Congress)
Nominee: Marilyn B. Tavenner, of Virginia, to be Administrator of the Centers for Medicare and Medicaid Services, vice Donald M. Berwick, resigned.
Referred to: Senate Finance
Floor Action: December 01, 2011 – Received in the Senate and referred to the Committee on Finance.
Organization: Department of Health and Human Services
Now for some background information. In December, I published the following article in HME News, the publication for the home medical equipment industry which may help you understand the circumstances behind the nomination of Marilyn Tavenner to head the half trillion-dollar agency which significantly affects the life and health of all Medicare and Medicaid recipients.
Who is in charge of Medicare?
The wide-ranging debate over Medicare, a major factor in the presidential election next year, primarily focuses on whether future generations will benefit in the same way that the current 46 million recipients like me benefit. Politicians, critics and would-be-recipients express the illusion that the health care I receive from Medicare represents the ideal. I believe that the only way to save Medicare is to dramatically improve the way it is run today so that it remains a program worth saving.
The primary audience for this commentary is the men and women who provide DME other equipment necessary to sustain and maintain the quality of life. Recently, 87-year-old Lilian Hutchinson, who gets around on an unstable walker, fell and broke her elbow in an independent living facility for 90 elderly and disabled residents where I live in State College, Pa. I believe that if Lillian had access to a scooter or a power chair in her apartment, she would not have fallen. The tales of needless suffering you could tell resulting from a Medicare bureaucracy that increasingly limits access to mobility equipment and medical oxygen seem beside the point.
Durable medical equipment represents only a small fraction of the Medicare budget. The whole system for providing medical care for the elderly, disabled and poor is not working efficiently in large part because of the absence of leadership at CMS, an agency of the U.S. Department of Health and Human Services. My intention here is to answer the question: Who runs Medicare? In theory, Dr. Donald Berwick, a distinguished Harvard physician with an outstanding reputation as an advocate for efficient health care, runs CMS.
Last year, President Obama named Dr. Berwick to be administrator of CMS, a position one senator described as the nation’s health czar since the job also includes putting in place much of the legislation passed last year, which, by one estimate, will extend health care to 32 million Americans who do not have coverage.
Sadly, the president had failed to appoint an administrator early on in his administration, when Senate confirmation would not have been a problem and when an adviser with the expertise and gravitas Dr. Berwick has in the medical community would have proven useful. The major flaw in the president’s landmark legislation was how he intended to pay for it. He decided against raising taxes, which might have doomed passage.
Instead, half the estimated trillion dollars required to extend healthcare coverage was targeted to come from savings to the Medicare budget as a result of achieving cost savings, reducing fraud and abuse, and increasing efficiency. Anyone who has ever made a New Year’s resolution to save money can tell you it is imprudent to spend it before the money is actually saved.
By the time Dr. Berwick arrived at Medicare, he was in the impossible situation of being required to save $500 billion, a requirement for which he had not been consulted and in a situation where the president had given him neither the time nor the authority to implement.
The political comedian Mark Russell observed, in a similar context, that exercising leadership without the necessary authority is equivalent to sending a eunuch to an orgy. Fearful of Republican reaction to Dr. Berwick’s appointment and unsure of the allegiance of Democrats on the Senate Finance Committee, the president refused to fight for Berwick’s confirmation or to find a replacement who would achieve bipartisan support.
Using the recess appointment mechanism, which allows a president to appoint an official on a temporary basis while Congress is not in session, Berwick currently serves as acting administrator and will be replaced next year by his deputy Marilyn Tavenner. Tavenner, while respected for her organizational skill, her background as a nurse and a hospital and state health care administer, does not have the stature required to lead what is in effect a cabinet level position.
Although CMS has a larger annual budget than the Pentagon, as I write this, there has not been a confirmed head of Medicare since 2006. For the purposes of comparison, if the Defense Department did not have a confirmed secretary for five years, there would be a national outcry.
–Joel Solkoff was a political appointee in the Carter Administration, serving as special assistant to the Under Secretary of Labor. He believes a bipartisan solution to the problems of Medicare is achievable.
On February 3, I sent the following letter to Senator Max Baucus (D Montana), chairman of the Senate Finance Committee which has oversight over Medicare and has the power to conduct confirmation hearings on President Obama’s nominee to run Meadicare:
The Honorable Max Baucus
Committee on Finance
United States Senate
219 Dirksen Senate Office Building
Washington, D.C. 20510
Dear Senator Baucus
I am writing to request an invitation to testify at the confirmation hearing of Marilyn Tavenner to be Administrator of the Centers for Medicare and Medicaid Services.
I am a paraplegic who is a Medicare recipient. While I am generally supportive of Acting Administrator Tavenner’s appointment, especially since it has been so long that CMS has had a confirmed Administrator; I have considerable concerns about durable medical equipment. As a user of mobility devices and as one who has researched other equipment in the durable category, especially medical oxygen, I think it important that my concerns be discussed.
Specifically, I am concerned about the cumbersome procedures involved in obtaining medical equipment. The current competitive bidding program, the absence of assurances that award winners will provide batteries, other necessary equipment, and maintenance are among the issues on which I would like assurance—both from Acting Administrator Tavenner and from the Senate Finance Committee with its oversight responsibilities.
I realize that no hearings have been scheduled as of this writing. However, given the importance of Medicare and Medicaid I would appreciate my voice being heard, especially on the subject of indigent disabled individuals who have suffered most from current and proposed CMS practices.
I write frequently on disability issues for Voices of Central Pennsylvania, HME News, the monthly publication of the home medical care industry, and for a variety of other publications. I am the author of three books including Learning to Live Again My Triumph over Cancer. My disability writing can be accessed easily by keyboarding my name into Google.
Of course I cannot testify unless there are hearings.
For a number of reasons, it seems likely that Marilyn Tavenner is not a controversial nominee and the committee and the Senate would vote to confirm her.
It is hard to run something when you do not have the necessary authority.
Politicians are using this election season to talk about the important of Medicare and Medicaid. If they really believe what they say they would hold confirmation hearings.
There has not been a confirmed had of Medicare since the Bush Administration.
From Where I Sit Disabilities Info Expanded at Voicesweb.org
[The following is my April, 2010 column for Voices of Central Pennsylvania.]
I learned something 15 years ago when I became unable to walk. Yes, there was the grief over losing a power I had once cherished I loved to walk. At Columbia, I walked routinely from the 116th Street campus to the Village. In San Francisco, I routinely walked from the top of Telegraph to the Potrero Hill At Cheltenham High School in Wyncote PA, I won a varsity letter in cross country—where the standard event was a two-and-one-half mile run.
When I look back excessively, I am at risk of truly living in the past. Especially noteworthy,I learned that thanks to battery-powered mobility devices, known as scooters and power chairs, that I can and have been living a productive and enjoyable life.
How I learned this lesson and how I had the good sense to apply it is a subject for a different Voices medium; namely, our Web page. This column is limited to 800 words and I have much more to say. Bill Eichman, Voice’s crafty webmaster, has come up with a solution—From Where I Sit now has online editions. Turn your browsers to http://voicesweb.org/joelsolkoff to view the following Voice’s websites for such new On-Line From Where I Sit blogs:
In 1904 Helen Keller Became the First Person Who is Blind and Deaf to Graduate from a U.S. College
Blog 1: Appreciation of Helen Keller. Helen Keller is the hero of the self-help for individuals with physical disabilities movement to which I belong. In 1903 Keller wrote about her experiences taking college examinations, “Just then the proctor informs you that the time is up. With a feeling of intense disgust you kick the mass of rubbish into a corner and go home, your head full of revolutionary schemes to abolish the divine right of professors to ask questions without the consent of the questioned.”
Keller was both blind and unable to hear. She wrote these words in her autobiography The Story of My Life on a typewriter. She could not see what she wrote. She had the option of using a Braille device, a process Keller thought too slow and only used the device for making notes. The story of Keller’s writing her story has been extensively published. Keller’s words themselves are so astoundingly beautiful.
Consider: “Even in the days before my Teacher came, I used to feel along the square stiff hedges, and guided by the sense of smell would find the first violets and lilies.” The described intensity of Keller’s need and drive to express herself must be experienced directly.
Readers are encouraged to download The Story of My Life at the American Foundation for the Blind, :http://www.afb.org/mylife/book.asp?ch=HK-title and especially to comment on my view that Helen Keller is the George Washington of the Disability Rights Movement.
Blog 2. Association for the Blind in Blair and Clearfield counties (also including Centre County). I have just been hired as Employment Specialist for the Altoona-based Association for the Blind. Assistive technology for the blind is too astounding to discuss succinctly. In the blog, I plan, among other issues, to describe in detail the technology as well as demographics for the blind in each of the counties we serve.
My director Joseph Fagnani will have me focus most of my attention on two tasks.
1. Helping to find jobs for low-vision clients;
2. Writing funding proposals to get supplies;
thus making it easier to obtain contracts and eventually expanding the scope of our services.
I am commuting from State College to Altoona one day and telecommuting the rest of the week. In this blog, I will describe the contrast (as I see it) between State College and Altoona. What a contrast.
Blog 3. Legal Advice on Social Security Disability. My attorney and friend Peter Pinnola, whose office is in suburban Philadelphia, answers questions online about Social Security Disability Insurance (SSDI). Peter is a member of the National Organization of Social Security Claims Representatives. My experience with lawyers not a member of this association is bad. They gave me incorrect information.
A major theme of my column is the notion of having a permanent disability and still being able to work. Peter’s advice will also provide details on issues and dangers in getting off SSDI and getting off it properly without risking the option of returning to SSDI if necessary.
Finally, I recognize that my columns put me in danger of coming across as someone who does not see the value of emotional counseling—psychiatrists, psychologists, MSWs, and therapists of various incarnations. To the contrary, I love all of them (Freudian,Jungian, Adlerian, existential, and feminist therapies). Therapy is often critical in helping people with disabilities find the tools (including emotional tools) to lead meaningful lives. Therapy, however, can never be a substitute for the right physical tools. My mantra is “durable medical equipment, durable medical equipment.”
—Joel Solkoff, author of The Politics of Food. Contact him at [email protected]. See more at Joel’s blog: .